Behind every good kid is a GREAT Father!
Happy Father’s Day my love! (Our poor Daddy has a fever and pink eye today!)
Looking forward to seeing everyone Saturday. God Bless you all!
Posts tagged religion
Date of Celebration!
We have a date for my darling’s Life Celebration!
Saturday, June 23rd, 2012 at Corpus Christi Catholic Church, 1050 Celebration Ave., Celebration, FL 34747
http://www.celebrationcatholic.org
Time and details to come – it will be very child-friendly 
and everyone is welcome!!!!
Please, Please, Please - In lieu of flowers, donations may be made to Noahslightfoundation.org - (I have so much to tell you – Noah is commanding an Army!!!! I will tell you soon!)
If you are a Disney employee, please donate this way -
God Bless You all – Thank you my baby Noah for strength! I am so in love with you!
Power of specific prayer, update and Star Wars weekends
On Tuesday, Dennis and I received some information about Noah’s Disease that paralyzed us. I’m not going to write about that yet, because we are still processing, talking and praying – but this is why I am writing. I would like everyone to visualize Noah’s brain. See the squiggly cracks on the surface and the ventricles… that’s where the cells are collecting and growing. Visualize and pray – picture them disintegrating and dying. I used to post pictures of his scans and I haven’t – I will again as soon as I can get them. Tomorrow, we have an ultrasound on his liver – another story… can’t talk about yet. Please also pray for the health of his brain and his hand. He has a tremor; it doesn’t stop shaking. His short term memory is also damaged. Legos and Star Wars are still intact. My baby’s beautiful mind… he is so sweet. We are still fighting! (An angel reminded me – visualize and pray – thank you Judy!)
Second, after Tuesdays events, our family is going to spend some unbelievable quality time. We had planned a Disney cruise, but it’s too dangerous – so we are going to stay on Disney property. Calling all “in the Disney know!” Email me if there is anything I need to know – I need to make some REALLY, REALLY special childhood memories – especially with Star Wars Weekends and princesses.
Third, please pray for guidance and the NK cells. The team is amazing – they are working so fast and hard. Pray for the scientists and that we don’t run out of time.
Finally, please pray for the Appleton family. Tuesday, little Blake, whom I have written about before, passed. This wonderful, amazing little warrior has received his wings. I will never ever say the standard “it’s for the best”… or “now he’s at peace… no more suffering” - that’s absolute garbage. These children should not have cancer in the first place… they should be children. I will fight this serial killer for the rest of my days.
ps. 12 children diagnosed with brain tumors a day in the U.S. Can you imagine 12 children being abducted a day? There would be a manhunt – the country would stop! (That’s a pandemic to me.) Ridiculous!
Prayer for Healing
Lord, look upon Noah with eyes of mercy, may your healing hand rest upon him, may your lifegiving powers flow into every cell of his body and into the depths of his soul, cleansing, purifying, restoring him to wholeness and strength for service in your Kingdom. Amen.
Prayer for Doctors and Nurses
O merciful Father, who have wonderfully fashioned man in your own image, and have made his body to be a temple of the Holy Spirit, sanctify, we pray you, our doctors and nurses and all those whom you have called to study and practice the arts of healing the sick and the prevention of disease and pain. Strengthen them in body and soul, and bless their work, that they may give comfort to those for whose salvation your Son became Man, lived on this earth, healed the sick, and suffered and died on the Cross. Amen.
I’m really trying to post positive – Please Pray!
My baby is not doing well. He is winding down and we don’t know what to do… well other than pray. Dennis has just raced him to the hospital and I am waiting on my Mom to get here. (St. Patrick’s Day, Easter…and now Mother’s Day.) Last week, we swam…Noah said “if I could do anything right now… it would be to go on another Disney Cruise” - we had the tripped booked before he could finish the sentence. I guess we will be canceling that.
I will keep you posted - Please Pray… even if you normally don’t. I don’t want him to suffer and I am absolutely not, not, not ready. Dear Heavenly Father, you are in control…if Noah is to go home…please help him gently, please help us…please help all that are reading this now. I pray in the name of the Father, Son and Holy Spirit, Amen. Thank you all.
Baby is still sleeping
My sweet love is still asleep. This morning they will asses him and I will post again. He is still on the ventilator and sedated, but I know he can hear me singing and praying. (He is going to be really, really mad that he has an IV in his arm.) Anytime that he is ever asked if he is allergic to anything he always says “Only one thing… IV’s!” I can’t wait to hear him yell about it… My sweet love.
Thank you for all of your comments and prayers – we read every one. You give us so much love and strength.
Dear Heavenly Father, thank you for all of our blessings and yes there are many. We know that you love Noah and that you are with us. Please give us and everyone praying for us strength and peace. I pray for clarity in all things. We pray for healing, guidance and miracles.
In the Name of the Father, Son and Holy Spirit – Amen.
