Posts tagged praise god

Good Morning!

Good morning! What powerful words. But it is a great morning! Praise God.

I have so much to tell you…God and Noah have been so incredibly busy! I had to take a little summer break because July and August have been the worst months of my life. Crazy right? Wouldn’t you think maybe … humm… May or any other month in the past 3 years? Nope. These past two months have been unbelievable and it was nothing that I could have prepared for, because believe me, I tried. We have all experienced loss in our lives… a Grandparent, a Parent, a pet, a friend… and we know how ridiculously painful it is, even if we know that our loved one is enjoying all the glories of our Lord in Heaven and that we will be together forever in eternal life. Especially in our case! Noah is changing the face of cancer research (I promise to write about it soon) and his purpose is so much bigger than any of us could have understood at the time. (Once again… God’s plan not ours.)

BUT, and here’s the big but. We are human…. DRATS!!!! Dennis and I were having the same panic attacks and didn’t even know it. Ones that you would never expect.

Here’s one example… unfortunately, one of many.

Remember when you were a new parent and you had the nightmare of leaving your child somewhere? We will be in the car and spontaneously start sweating and shaking with flashes that we have forgotten him or left him somewhere. We leave Publix and think he has been taken…or we were on a plane to Birmingham and can’t find him. Many, many things like that. Things that you would not expect on top of all the “normal” missing him…his voice, his brilliance, his “I love you”,  his touch, his smile, Star Wars, Clone Wars, Legos… more than anyone can imagine.

Whew…

BUT, another big but! It’s changing. Everyday. By and through the Grace of God, we are still being lead and Noah’s helping.

I hadn’t dreamed about him (even though I really wanted to) until two weeks ago. He was sitting in a huge chair with 3 other children… all getting infusions. A doctor was standing in front of them…being silly, trying to make the best of what was happening to them (God bless them, doctor included) and I said to Noah “Do you believe this Noah?” Watching the doctor and shaking his head, he said…”I know Mom…I know..”  Then he turned and stared at me and said “But Mom, there is no reason to give up hope.” I suddenly woke up. I was so real and it was so great to hear his voice.

Everyday, when I tell Noah’s story and tell what’s happening now with Noah’s Light, I’m shocked! (In a great way!) Everyday, God centers me and gives me the breath to continue what I’m supposed to continue. There is no reason to give up hope… changes are being made. Noah has accomplished so much! Thank you my baby… thank you! The world thanks you… well, they will soon. (I promise, I will share what’s been happening… I just needed to absorb it first!) I will also be asking for help. :-)

God bless you all! We are so blessed and it’s a really good morning!

p.s. Yes, the cardinal is still here… day 84. :-) He wakes us up every morning; this is Lu’s window – (Wow are my windows dirty!)

and doesn’t this look like a boy, with his 2 hands up at the base of this rainbow? (Maybe it’s just me… on my way home from work.) :-) Thanks for the painting Nono – I love you!

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The Celebration is this Saturday!

I have had many calls, so I thought I would post the information again – We are looking forward to seeing everyone! We have been so blessed – everyone is part of the celebration – he touched so many!

The Most Reverend Gregory L. Parkes, Bishop of Pensacola-Tallahassee and Reverend Richard W. Trout, Pastor of Corpus Christi Catholic Church will be performing the Service (Praise God!), the music is comprised of all of Noah’s favorites and we have many special guests – some that came to Noah’s birthday party! (We told the “Light Side” to come to the Church… others will meet us at the reception with the bouncy house.) So many want to celebrate his amazing light – this is how Noah wants to be remembered and celebrated. I was just telling Dennis, no matter how sick… no matter how he looked…(feeding tube and all)… he never quit joking and smiling!!!

I am speaking at 9:45 ish before the service and you don’t want to miss the video  -  the complete essence of our Jedi Noah!!! (Thank you so much Tom!!!)
The force is now even stronger with this one!

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His celebration of life service will be held at:

Corpus Christi Catholic Church

1050 Celebration Ave.
Celebration, FL 34747

Saturday, June 23, 2012
Service starts at 10 am with music starting at 9:30; I am speaking at 9:45 ish and you don’t want to miss the video after

Walking processional to Reception after at Town Hall, 851 Celebration Ave.
All are welcome!

The force will always be strong with this one. Praise God! We are wearing green – Noah’s favorite color – and as you can imagine, when honoring a Jedi, there will many there. Very child friendly. It is a celebration of his life!

In lieu of flowers, donations may be made to noahslightfoundation.org
(If you are a Disney employee they have a matching program, please donate this way.)

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Honoring Our Jedi

Well, it has been a week…feels like a lifetime. You would not believe all of the amazing miracles that God and Noah are revealing to us – pretty overwhelming, all in a good way. I think if I were to write about them now, it would be too much to process for many, but his “midi-chlorians” are not finished. I will be writing more on that soon!

Here are the details for Honoring our Jedi -

Corpus Christi Catholic Church‎

Saturday, June 23, 2012

Service starts at 10 am with music starting at 9:30

Walking processional to Reception after at Town Hall, 851 Celebration Ave.
- All are welcome

The force will always be strong with this one. Praise God! We are wearing green – Noah’s favorite color – and as you can imagine, when honoring a Jedi, there will many there. Very child friendly. It is a celebration of his life!

In lieu of flowers, donations may be made to Noahslightfoundation.org  -  If you are a Disney employee they have a matching program, please donate this way -  How to donate online with Disney

……………………………………………………………….

Corpus Christi Catholic Church‎
1050 Celebration Avenue, Celebration, FL 34747

http://www.celebrationcatholic.org/location/

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PRAISE GOD – He Spoke!!!!!!!

Last night, we were moved out of the PICU to the Hem/Onc floor. As I was holding him and praying, he looked straight up at me and said  ”Hi Mom!” In shock, I said “Hi my baby!!!!!! I called Dennis, threw it on speaker and Noah said “Hello Dad, How are you?” HE’S STARTING TO KNOW US AND HE”S COMING BACK!!!!! Again, I kept talking and he laid down. He looked up at me again, smiled and said, “My Mommaaaaaa” and I said back “My Bayyyybaaa.” PRAISE GOD!!!! Still very tired, as any of us would be after a major seizure and 20 thousand gallons of drugs. It was enough. :-)

In our tiny room, I am on a cot beside his bed. Do you think our Noah was going to follow the rules and stay in his bed? Nope! Even with the guard rails up and being connected to an IV pole, he crawled into bed with me.  This morning I told him to “please speak to the doctors so they know you can talk, no matter how mad you are” and he did. By no means is he total back yet. When we went into the bathroom, he was asking where Landin was. I said “At home with Dad and Zaza, but they will come today” he said “Where’s Mom?”  After picking my bleeding heart up off the floor, I told him that I was Mom. He looked up at me and smiled. I continued to quiz, then let it go. :-)  With rest, water, and prayer, he will be back soon. We are now snuggled in my “cot” and we are not moving out of this position all day. :-)

Thank you, Thank you, Thank you, Thank you, Thank you for your prayers!!!! Praise You our Heavenly Father. Thank you your miracles and guidance. Help me to be still and listen. Amen

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