Noah...may the force be with you!

Cardinal Lunch & Festivities

ambernoahsmom — Thu, 29 Nov 2012 11:59:50 +0000

Yes – our amazing cardinal is still here!

Thanksgiving was extremely painful – more than I could ever imagine. Thank goodness for the kindness of friends. At one point, Landin was so sad that she was sitting in her room crying. I sat with her and of course, our cardinal was right there. I said “Lu, why don’t we have a picnic in your room?” She was thrilled. We made lunch and went back to her floor. The cardinal was going CRAZY! I opened the window. He just stared then flew away. Not a min later he came back. I looked up… remember, I’m only a foot from the window… and I saw something big and black. I stood up and went to the window. He had a HUGE black bug in his mouth. He was going to eat lunch with us!

So…I sat back down on the floor… he jumped down to the bottom of the open window and we all had lunch together. It was really, really surreal!

Now festivities! Look what the amazing city of Celebration is doing! Please come join us and get discounted tickets online!

Oh how I love and miss you my sweet baby boy! You and our Dear Heavenly Father are doing great things! Wow – I just realized that I still haven’t written about Houston! Everything is going so fast! I will get to it I promise!!!

Thank you for your continued prayers and support! They are needed

Mi buotfl dotr

ambernoahsmom — Fri, 16 Nov 2012 11:58:17 +0000

Hello – it’s been a while – everything is going so fast! If there were only 1000 hours in a day! I will catch everyone up over December, but I have to share a quick story about Lu.

As I dropped her off at school the other morning, I checked her “mailbox.” I was excited to see a drawing from my little artist with a story, but was suddenly surprised. She has been writing stories like crazy… journals, after journals..but I usually sit close and help her when she gets stuck. When I tried to read this story, I got concerned. My dear Ms. Saint Leger (Noah’s teacher) was standing there and she saw the weird look on my face. (This is where my “mother of the year” award comes in.) I say to her “Kathleen, we may be in trouble…look at this!” She takes it…reads it, smiles and says to me “Would you like me to read it to you?” What??!? You can read that??? She said “Of course… you don’t read phonetics.” She giggled, got a huge smile and began reading…

“Once there was a beautiful Mommy, she lived with a beautiful daughter”

Oh my heart! I was thinking that we had big problems and she wrote a story about us!!!! With hearts!!!! I love you Landin! Mi buotfl dotr!!!

Wow … do I have some updating to do! But first… our Cardinal! Day 135

ambernoahsmom — Tue, 16 Oct 2012 02:22:22 +0000

Wakes us up every morning – says good night each night! Bang, bang, bang! Until we open the window…then tweet…tweet…tweet I slept with Lulu last night…he woke us up. (I’m going to have to tape what happens if we don’t open the window! It’s CRAZY!!!!

We are blessed everyday!

I am flying to Houston TX today to watch Noah’s NK cells kill his cancer cells. The “Noah Protocol” in action! God Bless you my baby! So many miracles!

I will catch up on writing soon!

God Bless you all!!

Thank you! You voted and we won 10k towards the “Noah Protocol” :-)

ambernoahsmom — Wed, 19 Sep 2012 20:44:26 +0000

Thank you! Thank you! Thank you!

Thank you so much for voting for Noah’s Light Foundation! Your votes gave us a $10,000 grant through Chase Community Giving. These funds will go directly to the “Noah Protocol,” a phase one trial utilizing personalized therapy, employing NK cells to fight cancer in a new protocol for pediatrics at MD Anderson Cancer Center!! With these funds, we are closer to “Lighting The Path” to a cure for not only Pediatric Brain and Spinal Tumors, but other cancers as well!! Go Noah Go!

You made it happen! Thank and God Bless you! Happy Birthday Noah!

Our Jedi’s 9th Birthday

ambernoahsmom — Wed, 19 Sep 2012 04:29:43 +0000

Happy Birthday my love! I know that you are battling with your lightsaber, probably making a journal of “colors and hilts,” then an afternoon of Legos. Dad and I are going to open your Malevolence Lego set today and play your theme… Anakin’s theme. Your two favorite things. We know that you are with us. Your sister is in your classroom, hosting your Lego birthday party – but you know because you are with her.

Pray for us my dearest love. Oh, to bask in the Eternal Glory of our Lord. What a birthday you will have – I couldn’t wish more for my son!

For all of us left here, this was the video that was played at Noah’s Celebration of Life, honoring our Jedi.

Happy Birthday my Angel! Thank you so much for choosing me. I will always be in love with you … more everyday.

I love you…forever…eternity and beyond.

Dear Mr. Yankovic & Dear Mr. Lucas, I look forward to reaching out to you for your help for children like Noah. You made such if difference in his life and I would love to explore more options if you are willing to help me fight. Thank you for your gifts to this world and to our family.

Please Pray

ambernoahsmom — Mon, 10 Sep 2012 03:33:46 +0000

One child is too many! Here’s two more -

Please Pray for Claire Broadhead and Kellen tonight – very scary nights for both.

Claire was just rushed to the hospital with a spiked fever – she just had her port removed and was supposed to start school. Kellen has a very scary MRI tomorrow – God bless them and their families!

The craziest (sickest thing) is that I would give anything to have that scared “tomorrow” feeling - (I prayed and laid in the MRI machine with him every time) and I hate that anyone has to experience it. I miss you so much Noah.

We are praying for both families – God Bless you both! He is with you! Nono, please help them. I love you!

please click here and vote – let’s stop this!

https://www.facebook.com/ChaseCommunityGiving/app_162065369655?cv=2&app_data=ein%7C27-1804403%7Cref%7Cb7775da95b

Words of Wisdom :-)

stinkyflowers — Sat, 08 Sep 2012 03:01:02 +0000

I have to share a story. Noah and I were having one of our “Noah old soul” talks and we were talking about life, work, everything. He was asking a million questions and Noah was always perplexed at the fact that someone would not do something to the fullest. His life was black and white – no gray. Right or wrong. Remember, Noah was the child that used to put himself in “time out.” I put him once. After that, I would find him sitting there… “What are you doing Nono?” “Well Mom, I was thinking about doing something and I needed to think it out first.” He would sit, work it out in his head and be done.

He used to say that he was going to be the next Walt Disney or George Lucas, because they “did.” (Just “did!”)

So, after our “Old Soul” talk, he walked out of my office shaking his head to frustration. Anytime anyone wasn’t “living up to their potential” it would make him crazy!

Five minutes later, he walked back in and pinned this to my wall -

He said “I drew flowers to make it a little nicer… but never forget to DO IT NOW!!!!” And he walked out. So, my new mantra … “Do it Now!”

Just sayin’…

https://www.facebook.com/ChaseCommunityGiving/app_162065369655?cv=2&app_data=ein%7C27-1804403%7Cref%7Cb7775da95b

God Bless you all!

Go Team Noah!!!!

ambernoahsmom — Fri, 07 Sep 2012 01:09:06 +0000

We are on a ROLL!!! I can’t stand the fact that voting/technology couldn’t keep up! Don’t get discouraged!! Keep Voting! Our, meaning “all of our”, baby boy is cheering!!! You are all amazing! We have the power to change this and you give me the support to battle!

Keep Sharing – Keep Voting!!!! God Bless you all!

Noah…I love you more – To infinity and beyond! (I shared with “Aunt Heather” today…that’s how we tucked in every night!)

https://www.facebook.com/ChaseCommunityGiving/app_162065369655?cv=2&app_data=ein|27-1804403|ref|b7775da95b

Vote to honor our Noah on his Birthday!

stinkyflowers — Thu, 06 Sep 2012 05:29:13 +0000

Here we go! Spread the word around the WORLD Happy Birthday Noah!

Help us honor him and support the visionary researchers who have come together and focus on these children - It costs you NOTHING, but will be PRICELESS for them!

_______________________________

Voting Steps

Click the Noah’s Light Foundation link:
https://www.facebook.com/ChaseCommunityGiving/app_162065369655?cv=2&app_data=ein|27-1804403|ref|b7775da95b
Log in to Facebook if you haven’t already.
Click to “Like” Chase (If you do this, we get extra votes
Click to “Vote” for Noah’s Light Foundation
You may have to allow the application first, but after doing so just return to our Noah’s Light Foundation Chase Giving Page to vote for us!

(Note: if you search for us, please use the search term “Noahs Light”

That’s it! If you are having any difficulty, please click here for “step by step” pictures on our website.

After you vote, please be sure to ask your friends to vote and forward it to:

• All of Your Friends;

• Your Company Directory;
• Your LinkedIn;
• Your Church Directory;
• Your Email address book;
• Your Client Database;
• Post and Share on Facebook (if your friends “like” it – we get more times to vote);
• Tweet it;
• You tube it;
• Share it with your School;
• Post it on your Blog;
• Post it on others blogs… share, share, share!

Thank you so much for being part of your “Light” for these brave children!

Amber

I need your help! Help me honor Noah for his birthday – It starts Thursday :-)

ambernoahsmom — Wed, 05 Sep 2012 03:13:59 +0000

September is not only Pediatric Cancer Awareness Month, but it is my sweet baby’s birthday. My Jedi would have been 9.

I honestly didn’t know how I was going to get through the month and then I got this news:

Noah’s Light Foundation was nominated for Chase Community Giving’s $250,000 to the charity who gets the most “Votes & Likes” on the Facebook voting page and the deadline for votes is (drumroll, please)…

September 19th…Noah’s birthday! Seriously, what are the odds?

I wanted to thank you all for your kind words, prayers and offers to help. Now, I am flat out asking for major help.

On Thursday, I will be posting the link – voting starts then (Sept. 6th – Sept. 19th.) Will you PLEASE take a few minutes out of your day to vote for Noah’s Light Foundation and pass the link on everyone you know? (And and even those you don’t know!) I am asking now so you can take a minute and really prepare your own campaign for Noah.

Forward it to: Your company directory, your LinkedIn, your Church directory, your email address book, your clients, post and share on Facebook (if your friends “like” it – we get more times to vote,) Tweet it, You tube, share it with your school, post it on your Blog, Post it on others blogs… share, share, share!

It costs you NOTHING but will be PRICELESS to the 12 children a day in the U.S. who are diagnosed with pediatric brain cancer…yes…12!!!

Thank you in advance for shining a “light” for our Jedi Noah!

I will be posting and emailing the link and instructions on Thursday, Sept. 6th! This will be our link -

https://www.facebook.com/ChaseCommunityGiving/app_162065369655?app_data=ein|27-1804403