Happy New Year! And New Ears.
I am growing as a person and as a Mom everyday… even if I don’t want to. God give me the strength.
My darling, amazing, think everything is “awesome” son has given me lessons beyond his years.
Noah and I went to get his hearing aids today. He was great with it…Me? Hummmmm.
On the inside, I was so mad, heartbroken, disgusted at archaic chemo taking my precious son’s hearing. The boy who has a signed picture of John Williams on his wall. The boy who has been made sick for 2 years trying to fight for his life!!!! And oh… by the way, on top of EVERYTHING else “he’s going to loose his hearing…we don’t know how much.” Just one more thing stolen from my beautiful angel.
On the outside, “Noah, those are so cool! They look like Com links!! (Star Wars/Clone Wars.) He thought they were great! And… because he can hear me whisper “I love you” … I do too.
They are green…his favorite color. They are Star Wars cool…his favorite thing. We walked to the car and I told him to tell me everything new he could hear! I started the car and as a surprise hit play on the theme song to Star Wars! His smile was SOOO BIG!!!! I can hear everything!!! We conducted and sang the soundtrack all the way home!
ps. I told Maryellen tonight that I am writing a book (so consider this a copyright.) Title: “I can explain ANYTHING with Star Wars!” Hearing aids, radiation, surgery, infusions, mechanical implants in your head, good, bad, life, death, the force (Heaven)… EVERYTHING! I’m going to ask Mr. Lucas for permission. :-)
Dear Heavenly Father, help me learn; lend your hands to our researchers for these children. Amen.
Goofy boy!
Uncle Marc said,
January 6, 2012 @ 12:15 am
Awesome! I am proud of you, big Noah! And those new bionic ears are just awesome. We love you!
hilary bockham said,
January 6, 2012 @ 3:56 am
Happy New ears from the whole of Rome.
Your vatican guide
Hilary
Jamie Butler said,
January 6, 2012 @ 9:20 am
Love that boy! Love you. You are an amazing mom. May God continue to give you His grace and peace. I will forever think of Noah when I hear all things Star Wars.
Debra Larkin said,
January 6, 2012 @ 11:31 am
If only our brains were wired like this amazing boys. Everything is an adventure.
It’s Noahs world and we feel pretty lucky to be in it.
Love you all,
Grandpa and Grandma Larkin
Cheri and Olivia
jackie murphy said,
January 6, 2012 @ 12:11 pm
Noah is so inspiring. He always looks at every thing he has to face with a great attitude and it becomes a new adventue for him. He is the BEST. I have yet to meet any of you but you are always in my thoughts and prayers.
Brent said,
January 6, 2012 @ 3:48 pm
Love the book idea and that mom had his favorite track cued up. Happy New Ears to the coolest family and young Jedi in the outer rim.
Anne Gaillard said,
January 6, 2012 @ 7:48 pm
Noah is amazing, and so is the rest of your family!!! I wish I thought I could be positive like you!!! I know it is hard, but you have a very special boy there!!! You and yours are making this time very special for him!!! You will be blessed forever!!! Love to all, Anne
Lorie Shewbridge said,
January 7, 2012 @ 8:41 pm
Amber… you are so inspiring to me, as is Noah! You give me strength to deal with anything that comes my way.
I wish I could take all of your pains away and help Noah with my prayers as I am sure everyone who knows you wishes.
I completely LOVE NOAH and his spirit. God bless you all during the new year and many years to come.
Love, hugs and prayers, always!