And God is amazing! I couldn’t leave my post as a “panic” one. I am calm again, God is in control and he is awesome 
.
I will have some “Where in the World is Noah” posts soon! Stay tuned! I wrote a friend tonight that “We may finally see Noah speechless!”
(My mother can’t stand… “To be continued..”. I apologize )
This is very dangerous for me. I don’t let myself do this often, but with the end of school it’s hard not too. “Memory lane” is my dream world as well as a nightmare that haunts me. This post is more for me to get this out of my head than anything else.
A couple of weeks ago, life got normal. Almost flashback normal and I don’t think I have recovered. I am not one for living in the past. I believe as an adult, the past makes your character of today… good, bad or the ugly… hopefully one learns, grows and changes. But, as a parent, we look back at our babies and remember with longing. And most of the time you can balance out the past with thinking about the future. That’s my rub. There’s where I spin out of control.
Back to my story. A couple of weeks ago, life got normal. The most amazing school on the planet, the Montessori School of Celebration, had the end of the year picnic. It was like going back in time. I was completely prepared to see everyone; it’s really wonderful! But then… I thought my eyes were playing tricks on me. Children that we haven’t seen in several years were there. Noah and his best friends from the past were posing in the same pictures for me as they did in 2008! I was freaking out a little. I thought my dream of going back in time was coming true – I thought my super power worked!!!! I still haven’t really recovered.
Then that weekend, we got to see Dylan! Noah’s girlfriend (wife to him.) If you have read this entire blog, this is one thing that has never wavered – through nose tubes, no hair, sickness and in health … didn’t matter. We had a play date at Aunt Robin’s. (It was really Mommy’s play date – I didn’t want to leave. Thank you Robin & Tracey!) They hadn’t seen each other in almost a year and once again… it didn’t matter at all. They had so much fun! We had so much fun!
God bless these children! I can’t wait to watch them all grow up! And I do mean all!
Specific Prayers & What’s Next. It’s a doozy.
On this page, I will be posting our next steps. This has been a long time coming. (Very, very scary – very, very exciting.) I will update this page as we go.
Thank you God for Your strength! Thank you God for our Noah!
Pray, Pray, Pray!!
Hello and thanks for trying to vote! We will get them next time and I will try to know more in advance.
So, last weekend we went to Kennedy Space Center to see the launch. Wonderful friends of my Mother (and now myself) Tony and Wanda sent Noah a package from NASA last March inviting him to come out for a tour. They are best friends with an astronaut, Tamara Jernigan, who was on an Endeavor Mission. He was way too sick at the time, but we put it in the back of our heads. Now was the time to take it out! Zaza (aka: Nancy, my Mom) made lots of calls and Jillian at KSC whipped up a VIP day that Noah would never forget. Thank you Jillian, NASA and everyone at Kennedy Space Center!!!!
We got there super early to be bused out to the VIP launch area. (Yes, I did have green bracelets and a speech prepared for the President.) Before we did that, they severed lunch and we had some time to visit the attractions.
Ok… this is a blog side note…. I’m noticing something. If you have ever watched the Oceans 11, 12 or 13 movies, you will see that Brad Pitt is eating in almost every scene. I think he and Lulu have something in common!
We started walking back to the bus area and … da, da donnnnnn! Scrubbed!!!! I thought, well we could still meet the President. Noah said “Can we please go check out whatever that Lego thing is?” President… Legos? Legos win!!!!
Just to let all of America know, this was the reason the launch was scrubbed, not a heater. I apologize, it was our fault. This is what happened and if the launch would have gone off, we would have missed this -
The amazing company of Lego was doing an educational exhibition where the children got to come in and build their hearts out, with mountains of Legos and display their works! “Mom, I know where most of these pieces come from, but there are pieces I have never seen before!!!!! Minds were blown!!!!
And here was the most amazing part… Noah found out that some of the actual Lego designers from Denmark were there!!! “Mom the real guys!!!!” Noah met the most wonder man, Daire, who now is his HERO! He designed the new space rocket that won’t be in North American until next year. When Daire told Noah that he didn’t need the instruction, because they were in his head… I thought Noah was going to explode!!!!
While Noah interviewed him for hours (literally) Zaza and I got to chat with Stephan Turnipseed, President of LEGO Education North America. What a wonderful man with the same the philosophy “Children think with their hands!” Legos have always stimulated Noah’s brain and from the day of his first surgery, they have been a blessing to us!!! (He has done over 150 sets!) What a great, great day!!
We stayed the rest of the weekend, waiting for the shuttle and playing in the sand. God blessed us again!
(Sorry about the shuttle everyone, our fault.)
I just found out that Noah’s Light Foundation is up for a grant from Chase bank! They nominated us but it goes by votes!!! click this link and VOTE!!!!
http://apps.facebook.com/chasecommunitygiving/charities/271804403-noahs-light-foundation
It ends TOMORROW!!! Spread the word!!!! Tweet, Email all your friends, Facebook… everything!
Vote, vote, vote like crazy!!!! Thank you!
