Noah…may the force be with you!

And we are tired. Thank you for your thoughts and prayers. If Noah gets a fever over 100.3 …(yes 100.3) …we have to take him to the hospital because he has a “port” under his arm that goes straight into heart, the line could have a bacteria causing the fever and they have to check each time. (For that matter, he has an “ommaya reservoir” in the front of his head that goes straight into his brain… geesh…can’t check that one.) His fever was 102 ish, and he was freezing with chills (and by the time we got vitals, we were both covered in vomit – not pretty.) Usually the drill is: go to the hospital, get admitted (because they want to grow the cultures for 24 – 48 hours) and we are stuck hooked up to antibiotics and fluids for 3 days. This time was different – don’t know why. Noah was poked and prodded all night; he got a little sleep. I sat on the bed and in a chair beside him. They finally let us go this morning. (Noah kept saying “but Mom, I don’t have my blood yet…I didn’t get my blood.”) No blood this time baby.

Ok, here are the blessings -we aren’t in the hospital!!!! That has NEVER happened before. We even threw clothes in the car for the 3 days. And his counts are good – ANC 4,100! Crazy…scary… and we are tired.

We are now home, semi-awake and after some sleep, going to watch Clone Wars all day. May the force be with all of us! Good night day.

I just went in to sleep with Noah and he was shaking and whispering “Mommy, Daddy, Mommy, Daddy, Mommy, Daddy ….” He has a fever… we are going to Arnold Palmer now.

Dennis and I just finished our prayers. On our knees… in our living room. God is good. Our Father, Who art in heaven. We give our thoughts and prayers to Thee. God bless you all for your prayers. Amen.

I’m going to sleep with my baby boy… Goodnight.

Noah asked me to sleep with him this morning and as I looked at his shirt, face and pillow, I had to bite my cheek to not cry. His hair is everywhere. Falling out by the handful. It breaks my heart for him.

Once we got up, I had to talk to him about it. He almost started crying… he said “Oh man!!! No Mom! I thought it was a dog hair on my face or a Mommy hair… not mine!! It’s everywhere!!” I know my sweet baby… (as my heart ripped out and fell to the floor)… “but remember, sometimes it falls out, then it will grow back. While it’s out… you look like Dad and Mace Windu!” (Star Wars… again with my references…) Then Noah does this thing. Like an adult. He pauses…reflects…takes a deep breath…and never mentions it again… but stays in my lap all day. (It scares me, because I know it scares him. He remembers the first time it happened… He knows this is going backwards.) My sweet boy… how I wish I could take this away. This really has nothing to do with hair.

Don’t be shocked the next time you see him. The way it’s coming out, it may all be gone by the weekend. (I hope it stops.)

With another MRI coming up, I wanted to shake off my “pity (anger) party” and reflect on all of the blessings that we have been given. For the next 33 days, the Corpus Christi Catholic Church in Celebration is having a Total Consecration Prayer and they have included praying for Noah’s healing. So many of you from that parish and thousands of you from other churches, other countries, all denominations, have kept our family and Noah in your prayers. I want to thank all of you. Here is the power of prayer is pictures!!! Visual Miracles! We have a long way to go, but through God and your prayers and petitions, we will make it! Satan will not win. Our prayers and our Heavenly Father are too powerful!!!!

(I have ordered more green wristbands for anyone that wants one. Just let me know.)

God Bless you and Thank you!!

We are in the infusion room getting our blood. (I wonder if I could get this blood blessed before it goes in?)

I have been completely spoiled with heath. I am so angry and selfish today. I am angry for every child sitting in this infusion room. I am selfish because I want to keep my son. I wish we could run. I wish I could take him somewhere and hide him from this. Not all the money in the world, no place in the world… I am so angry. All these children. All this suffering. I don’t know how these doctors and nurses do it everyday. I was spoiled by the last 4 months.

Dear Lord please forgive me… I am trying to do better. I pray for healing for these children. In the name of the Father, Son and Holy Spirit. Amen

Please pray for my friend Eunice Escobedo – she is battling along with us and needs our prayers! (Eunice – Sorry that I didn’t ask permission first) I’m angry about this too!!! (I get very upset when people don’t place the right emotion with the right situation, but today I’m replacing sad with mad to get through the day.)

We went to clinic today. Noah’s counts are low and he needs a blood transfusion. Wow… what a punch. We got to used to living. (I really want to live with him… I’m not ready to stop.) What a reality check.

We will be doing that in the morning. Please pray for him. Our next MRI is on March 17th – St. Patrick’s Day. This one will tell us if anything is working… It determines everything.

Dear Heavenly Father please help us. I pray for healing for Noah. I know you are in control. I ask these things in Your name. Amen.

Sorry, sorry for the few and far between updates!!! I promise to do better, but the Larkin’s have been busy!!!

My sweet babies have wanted to see snow for 2 years now. Back in 2009, we planned to take a trip to Lake Tahoe in Nov. to see snow for the first time. Of course … that didn’t happen.

But a couple of weeks ago…. WOW!! Stowe Vermont!!!! And over 18 inches of snow a day!!!! What an amazing couple of days! (p.s. Noah’s most FAVORITE thing in world is flying in a plane)

As we landed, it was snowing!!! Big, giant perfectly shaped snowflakes!!! “Mom… they are coming from the sky and they aren’t soap!!!!!” I tried to fake him out at Disney… He didn’t buy it…

The kids were mesmerized! My cousin Karen and Aunt Sandy (who live there) made us a wonderful care package of warmness!! Vermont Teddy Bears, socks, face warmers, everything! (They know I’m like my Mom… freezing at all times!!!) We drove through a Norman Rockwell painting to get to the hotel.

We had the best of everything!!! Tons of snow, Beautiful blue skies (which they said they haven’t had since November) and then… the pièce de résistance … Karen set up tour at Ben & Jerry’s!!!!! (I think to was mostly for me!!!!) A one horse open sleigh ride, apple cider mills, glass blowing… Stowe could not be more beautiful!!!!! Thank you Lord!!! We are so blessed!

Enjoy!!!! (And I have lots more to post!)