It’s Tuesday and we are out of Arnold Palmer and back in Gainesville.
Let me share some news that we are taking as really positive and encouraging. Ok, we were all shocked by the Feb. 12th MRI. So we, including Noah’s doctors, started asking questions and searching. You all sent me so much great information and I went through every bit of it and here are the results. Looks like there is such a thing as a “lag time response.” This means that it is still working, just taking it’s time. We and Noah’s doctor spoke with her colleges from New York, Denver, Baltimore, Memphis, Portland – all over. She is wonderful. Some opinions were that the cells that we see on the MRI are the dead or dying, left over cells. Noah had a spinal tap on the MRI day as well. All of his previous taps came back negative – even in the beginning, but when they did this one, it was yellow. They were sure that it was positive. Guess what? Came back negative! Maybe the “yellow” was the dead cells being attacked by white cells. Noah is loosing more hair and eyebrows – that means something’s going on! Also, if this wasn’t doing anything, then it would have had 16 weeks to grow and he would be showing huge symptoms of advancement. He looks great and has gained more weight – 43.5 lbs! I’m praying that we are looking at dead cells that need to be flushed out!
Nothing is certain… all speculation, but Dennis and I (and the doctors) are very encouraged! So, we are going through with the stem cell harvest this week, take a week off and then do a more “middle of the road” chemo instead of the super intense. Then another MRI and we will evaluate. Should be around the end of March. The good thing about chemo is that we can start lower and work up. I guess God’s time wasn’t Feb. 12. Not my time, His time… Not easy to get through Mom’s head!!!
Oh yeah… want another baby miracle… (Dennis and I find it huge!) Yesterday, Noah and I were sitting together and he says, “Mom, I want an apple.” My head spun around, Dennis bounced off the walls… and we got him an apple. He ate a couple of bites and we had the first “no throw-up day” that we have had in months. That was the first bite of real food since Dec. 4th. Another miracle!
Alright, now the not so hot news… tonight Noah had a low grade fever so he had to leave the hotel and get admitted in the hospital. He was in great spirits and in my “Mom heart of hearts” I think it was just from the medicine that we have inject into his arm at night. When he has a real fever, he is flushed and cant open his eyes. I think this is just his bone marrow working overtime. (To do the “harvest,” they had to drop his ANC count to zero… yes ZERO!… and then when it was on it’s way back up, they harvest the stem cells.) My tough baby. He was so smiley today. So, he and Daddy are in the hospital. Mommy couldn’t go because she has a stuffy nose.
So I blog to keep me from going crazy!
ps. Did I tell you that Landin “shaved” her lip with a razor? Not pretty… we thought she had lipstick all over her face and sleeve … nope. Blood. Lots. And she didn’t even know it. Thank goodness for those icy-pops!
Dear Lord, I pray for Landin tonight. Please give her strength and comfort while we are gone. I pray for my Noah tonight. Please hold him through this process. Please make the stem cell harvest painless and successful. Please give us patience, peace, direction and clarity. Please kill the “bad cells” and remove them from his body forever. Let this all become part of his character for when he is older. I ask these things in Jesus name, Amen.