Ok… guess what the only smell is that Noah actually likes and the ONLY one that doesn’t make him nauseous? Bleach. Yes, like Clorox. So, when he is on the brink of sickness or right after, we spray Tilex on a paper towel and wave it or spray it in his toilet and let it permeate the room. I know… it’s crazy. I promise that I will not let him have more than a whiff - I’m trying my best to protect his brain on all fronts – even against bleach fumes!
12 days. I can’t really get my head around how big a day that is. I know the tumor in his spine will be gone. It has to be. His MRI is at 11:00 am on Feb. 12th.
I also want to report more blessings and answered prayers – Noah weighs 41 lbs!!!!! That’s HUGE!!! He looks WONDERFUL!!!! He is still really thin, but nowhere near the emaciated pictures from before (at maybe 32 – 35 lbs.). And, Ariel and Jenette sit down – I wish this could have happened in Gainesville, his port accessing – it has gone from a 1 million, (on a scale of 1 to 10 – 10 being the worst) to about a 5. He has gotten so much better – and now it’s twice a week! “Porty” even talks to us now – he lifts his shirt and pretends it talks! “Porty” can babysit Landin and gives me a kiss at night. (I have conversations with him too – and he really loves lullabies!) Hey… work with me… I will do anything at this point.
It’s a wonderful feeling – being wrapped in prayers! Thank you all! God’s plan is so mysterious in so many ways and yet so blatant! He lets us discover as we go and then some things… he drops right into our laps! It gives me chills when the puzzle pieces come together! (Thank you Jennifer A.!) Some taking years and some taking moments – even seconds! I am so glad to be experiencing His power and His will! Dear Lord – Thank you!
Please pray for Eunice Escobedo and Blake Appleton. Without telling too much because I don’t have permission, Eunice is a dear friend that is a mother of Noah’s classmate, battling the “c” word – notice, not capital – I won’t give it the respect! She and Noah discovered this the same week. Guillermo is her amazing husband and she has 3 wonderful babies. Blake is a sweet boy from Lake Wales that my parents and many other “Lake Walesians” know. His parents are Jason & Miranda Appleton; his Grandparents are Dottie and Jack Cooper. Blake is 6 years old (I think) and is battling the same that Noah is. (Dennis met them in Gainesville and we saw them last week at Arnold Palmer). Pray for their entire families. We pray for you each night and I am doing something about this. This Pediatric Brain cancer serial killer doesn’t know who he is dealing with!!! It picked the wrong family and community!!!
I will soon be announcing some big news.