We had our first radiation treatment today – scheduled for 11 am, but they wanted us there early to have a meeting. We met with all of the doctors and the short of it is that there is a large, black-olive size tumor at the base of his spine. Absolutely. Dennis and I have now seen it with our own eyes. The “one month ago MRI” showed a little mushy spot, today’s tumor was as defined as the original tumor. Once again… we did pray for clarity. Now, they are going to give it a boost of radiation; they cannot operate. We are thankful. If we would have gone through this whole process and then after figured out that “oops … that was cancer in his spine” we couldn’t go back and radiate it. We are back to high risk, M2 or M3, but we are thankful to God for the doctors clarity and a direct path.
So… Noah was amazing!! (His valium doesn’t hurt either He said that “this machine is AWESOME” and “I want to do this all day!!” – “This is better than Disney and there are NO lines!” On and on and on. The Ladies were laughing their heads off asking if they could keep him. They said they had never had child like him before. Of course… He’s Noah!
Once we left, he doused me with Silly String (nurses gift) and held Dad’s hand as we left. Tried to go eat; were sucker punched by the meltdown of head and stomach pain; he finally fell asleep and has been for about 3 hours now. I’ve called the doctor 3 times now. Whew. And we got tickets to the butterfly garden – silly Mom & Dad. (At least they were free.)
Tomorrow is our first Chemo and Radiation day – Let’s see what that brings.
We love you all – please pray for killing all of the cells while protecting his brain and body. (Also, pray for Landin, his little sister, she is starting to show signs of stress as she is home without Mom and Dad.
Thank you! Amber & Dennis